Tiny Expeditions - A Podcast about Genetics, DNA and Inheritance

Tiny Expeditions is all about taking little journeys into the tiny science of genetics, DNA and inheritance. This podcast doesn't shy away from science, but it's produced with you in mind. Everyone should be able to listen and walk away feeling smarter about the genetic code that defines the world around us.

All Episodes

Tiny Expeditions - A Podcast about Genetics, DNA and Inheritance

Turning Pain Into Purpose: Advocating for Families with Rett Syndrome

August 11, 2025 • HudsonAlpha Institute for Biotechnology • Season 6 • Episode 3

0:00 | 25:10

What happens when a rare disease diagnosis changes everything? When you're told your child will never walk, never talk. On this episode, we learn about Rett Syndrome and sit down with a parent who became his daughter’s fiercest champion and a patient advocate committed to giving these families hope. Join us for an inspiring conversation about finding strength, building community, and living life to the fullest.

To go behind the scenes and learn more about this episode, visit “Turning Pain Into Purpose: Advocating for Families with Rett Syndrome.”

Thanks for listening! We're now on YouTube- follow us here. To receive episode updates and bonus material, subscribe to our mailing list here.